@EiraQueenofSnow well, it's hard for me to say how much it affects my life, to be honest. It's definitely something I have to think about (on the back burner) most of the day, but I've had it since I was four, so it's kind of just second nature at this point. In general, it doesn't stop me from doing anything, I just have to plan a bit more for it. For example, I have my scuba diving licence, but I had to learn how to drink a juice box underwater in case I get low blood sugar. Mostly I just have to think about all the things that might go wrong and plan for them. I've only had to go to the hospital once for diabetes specifically because my blood sugar dropped too low and I passed out/had a mini seizure. I don't really remember what happened though, so I think it was worse for my family who had to watch it happen. As long as you stay on top of the condition, it's manageable, but it can be scary sometimes with all the needles and stuff >.< One of my best friends has JRA though and we bond over having auto-immune disorders. The worst thing is when people don't know how to react and treat you like you're made of out fragile glass, try to manage your condition for you, etc, etc. I don't know how many times people have reacted to me having diabetes by saying "Oh, so you can't eat sugar, right?" or "are you sure you should be eating that?!" I know they mean well, but sometimes it gets old. We're all just people, too, like anyone else! Different, but not less.
@EiraQueenofSnow I know a few people who have similar problems too, and they all say kind of the same thing as what you said about your sister. "Doctors couldn't figure it out" etc. Like, one of my friends was messed up for years and then it turned out she cad Celiac's Disease. I wonder if there's a lack of research and knowledge about female reproductive issues or something, because they certainly seem to have a difficult time diagnosing these things.
oh man.
Mentally I have ADD, Depression, and anxiety. As well family and friends want me to be tested for autism.
Physically I have very painful joint spasms in my legs that result in nasty cramps when drawing for extended periods of time. As well I have a weak immune system so I catch viruses very easily. Not to mention stomach problems that make it painful to eat or not eat. ouob
It's a shame it takes so long to be diagnosed let alone treated! I take steroids twice a day and am on my third treatment for RA. I was on Humira but it wasn't strong enough. Then I was on Remicade but ended up being highly allergic to it. Now I'm on Actemra. I have to sit with an IV once every month for that one but it's working somewhat.
You aren't supposed to be on steroids for too long. I've been on them for about three years now. (Way longer than suggested.) But I need them to be able to work full time and draw/walk. I hope you are on a low dose! The side-effects are horrid.
Since I'm not allowed to have additional pain medications, I use krill/fish oil and get plenty of rest. Also, foods like spaghetti sauce and anything high in salt can cause flare ups and inflammation. You need to keep a good diet and good sleep schedule. ++ I also suggest doing mild workouts. I finally am able to straighten my left arm after a few days of light-weight lifting. ^^
Good luck! I hope you find a routine and lifestyle that keeps the RA from holding you back. It's tough, but so many people are dealing with it! The chronic pain never goes away. (I can't remember a pain free day for the last five years) But it will make you tougher!
@Cielle yeah people do that with me too like oh you shouldn't do that or a do you need help with that. it gets tiring. Gah you're lucky you have someone you can talk to in person about this stuff. Whenever I bring it up to my friends I can feel them roll their eyes like not this again >.<;;;; Or on the other side they are like oh poor baby, not sure which is worse.
@Damon Oh man that's a long time to have joint pain. I hope there's a treatment that works for you (I don't know much about fibromyalgia but I do know about being in pain most of the time) Also you are lucky it hasn't impeded your drawing skills, though that sucks about the sculpting, did you use to sculpt a lot? Hmm it seems like a lot of people have depression or anxiety. Awe you have a train wreck of a body do you want a hug? DX
@VermillionWorks Yeah those count I'd say, I mean It's not the same as arthritis or tendonitis but it still get's in the way of life at times da? Gah tennis elbow! I strained that part of my body once it's no fun.
@purrlpankras7 Ouch, my aunt and mom have psoriasis and from what they say it hurts and itches badly...I mean I know it's not the same thing but both suck >.<;;;
@Amirai Oh man so really all you can do is wait? I am so bad at that.
@GlanceReviver You know that doesn't surprise me I mean I think studying the vagina and uterus are still in their infant stages compared to other organs (I mean it wasn't until masters and johnson that people came to recognize that women would fake orgasms and that a penis was not required for a woman to be stimulated and that was mid sixties so I guess it makes sense >.<;;; ) women's organs get ignored in medicine, did you know a woman's heart is different than a man's the arteries and veins are smaller, so heart problems manifest differently (particularly heart attacks.)
@Marchen Awe here baby have a hug *hugs
@MechanicalPenguin Just saw my doctor today and we're talking about putting me on a biologic and reducing the steroid amount (it wasn't a lot but they are a little heisitant to take me off it =.= ) I'm really freaked out about self injections are they easy to get use to?
Yeah I've been trying to change my diet I've mostly been sticking to a vegetarian diet and it seems okay, but my joints haven't really gotten better actually in the past month or two it's somehow gotten worse. /=
So weight lifting can help? I'll try that.
Yeah, a little bit of of a workout is good. Try to do ones that aren't stressful on your joints. Light walking, yoga, etc. Keep moving but never push yourself too hard. Doing so keeps you warm and your joints from getting stiff. Do you know the name of the biologic yet? I hope it works for you! Some people are able to get off of steroids completely. Also, self injections aren't that bad. I always did it in my thigh and allowed the injection to sit in room-temperature for about thirty minutes. If you do it while it's too cold, it hurts. I suggest just turning television or music on to distract you. Self injections are much better than hour to 3 hour long IVs at the doctors office. Self injections only take a second. ^_^
Also, remember that your immune system may be weakened so be very careful to wash your hands and stay healthy!
I think I might have picked up a bit of Acid Reflux from my Dad's side. My Dad has quite a few digestive problems when it comes to medical health. Occasionally, I get heartburn if I eat to much sugar, or if I don't get exercise for a long period of time.
I also have wind problems whenever I feel anxious or excited. Then there's my astigmatism, which is why I wear prescription lenses.
And then, of course, I have Aspergers Syndrome (not that that's a medical condition, but whatevs).
For many years, I was incredibly skinny because of an overactive thyroid gland (Graves' Disease). I could see my ribs and eating had no effect on my weight whatsoever. In fact, I had an irregular heartbeat SO bad that it prevented me from sleeping for about 8 to 10 hours every night! Went to the doctor, who determined the cause and I got a scan just to be sure.
If I had let it go on, my heart would eventually BURST, much like a car engine that's always revved up. No wonder I got more on edge and nervous as the years went on.
Now I'm getting the body mass I should've had, and my thyroid is elevated, with medication.
Are you currently using any topical steroids? This might seem really weird, but I'm currently going through something called topical steroid withdrawal and it's been living hell for me. I don't really want to go too much into it on here, but If you happen to be using them, I highly suggest you read into it.
Ok that's great, just wanted to let you know about it and if a doctor prescribes them to you, please read into it first. I made a mistake on relying on them for my eczema and it just ended up doing much more harm than good. Right now I'm going through this whole withdrawal because my skin is "addicted" to these steroid creams.
By the way, I usually make my own moistrizers with things like coconut oil, shea butter, and essential oils. I like them much better than store bought creams.
Hospital is my second home.
I've been sickly since I was born. I had convulsions and nearly died a couple of times. In my childhood, I met an accident to which they discovered I have tuberculosis. Elementary was full of headaches. Literally. Highschool, I got plagued by digestion problems which carried on until college. An unusual infection nearly blew off my insides. Ear problems manifested and it was later discovered that my ear canal was more crooked than normal. Spine problem followed. Recently this year, a lump on my back grew and it required a surgeon to take it out. Just when I thought my ordeal is finally over, my right foot swelled. I had to stay on bed with my foot raised for days. Now, thankfully, I'm well.
@MechanicalPenguin I started working out a bit and it seems to be helping a little so that's nice
Umm I'm going to be put on methotraxate, I was considering a self injection but I have serious trouble with needles and no one who is willing to learn how to for me >////< but it's just a trial period right now so yeah. Gah thanks for the warning I'll be sure to be careful.
@jayorten Ouch heartburn. oh man my sister has astigmatism as well and my dad has keratoconus I mean I don't but I do know that eye problems are sucky and sometimes the special prescription lenses help like nothing.
@atlas Oh man that sounds scary I'm sorry you had to go through that. I'm glad your heart didn't burst
@scottwuming Wow that's a long list of things, so your tb was cured right? because that's once scary illness, actually all of that sounds scary, I'm glad to hear that you are well now because that's a lot to live through you deserve some nice rest.
I'm deaf.
Well, 86% deaf.
As a result, I shy away from people and general chit-chat. It's not something I'd wish on my worse enemy and it's made my life quite unpleasant at times.
So, I sit at my drawing table and leave it all behind.
Unless, of course, I'm making a slyly concealed observational dig/gag about how us deaf people can be treated.
I have fibromyalgia.
I have had chronic pain since about 8 years old. I traveled to plenty of doctors. I was informed that I may have rheumatoid arthritis. By the time I was 12 I was diagnosed with fibro. I am soon to be 24 now, I can totally get you @EiraQueenofSnow.
I struggle a lot when it comes to sitting and drawing for hours. I have a hard time keeping focus, chronic fatigue, and mood swings. yay.
I tend to take a lot of breaks through out the day to stretch my legs. I try to do yoga daily and eat a low carb diet. I have learned that when ever I eat carbs, the fibromyalgia flares up.
]:
Experiencing digestive problems is normal to every person who eat too much. But when symptoms get worst then I will say we should have to take herbal supplements to solve digestion problems. The herbal supplements I always take when I got this symptoms is the one came from Mimonis Digestic. It does very well for digestive problems.
lel
I have a vitamin D deficiency because my bones r too stupid to absorb the goods
I have juvi rheumatoid arthritis in my everywhere
Psoriasis that has slowly spread from the top of my scalp to my inner earses
and costochondritis
I've dislocated my shoulder twice from picking up bags
My bones are prone to mysterious pain, especially my forearms and shins, which doctors can't figure out.
Today me and my mom shared winter joint pain stories and we're almost 30 years apart
It snowed yesterday and I may have to consider lifealert
Look at me, I'm falling apart :V
Look at you guys, you guys are falling part V:
Well, I have Aspergers aka upper level Autism.
Doesn't actually affect my drawing skills, but it can make me seriously depressed and get panic attacks, sometimes that being the cause of why I don't update as often as I should.
Fortunately, my best friend who also has Aspergers has been helping me cope with it as much as she can.
My mom's family has had a history of suffering the same problem @winglesscomic has, so I'm a bit worried I might eventually have that too.
Well, I have Crohn's disease. Literally last Sunday I shitted blood and passed out next to the toilet, my sister found me a moment later than my parents took me to the hospital and had a Colonscopy. (This is also why I haven't been on Tapastic for the past week.)
Edit: I'v had Crohn's Disease for a few years now, I wasn't just diagnosed.
I work mostly on the computer - 99% of my work is digital - and I have chronic migraines!
temporary blindness sorta puts a damper on my progress when I have to stop working and
take a break for about two days to recover..hehe.
I wear glasses, try to keep the screen dim and have a light on somewhere near me to take
the stress off my eyes. It helps, but it's not a cure hah.
I used to have some obesity problems. It was not so bad but it didn't let me to live a normal life. Even right now, after all these years I spent on overcoming these disease, I still have to use some pills (xenical, for instance http://www.rx-discountcoupons.com/coupons/xenical-coupon-code-10-off/) to feel myself in a good mood and to be in a good shape.
Oh hey, the medical problems thread...
I have quite a few maladies plaguing my daily life actually. I have Fibromayalgia which causes me to have unexplained and painful muscle spasms and phantom pains. I also have another fun little thing called Interstitial Cystitis, which is a painful bladder condition, I control the symptoms through diet alone (no citrus fruits, very little alcohol and caffeine, no smoking). I'm also allergic to a number of foods including cocoa and most artificial sweeteners, that means chocolate is completely out of the question for me :s.
On the up side, I've been able to treat all of my ailments through a clean, mostly fruit and vegetable based diet alone, and it seems to be working out pretty well for me at this time. ^^
Well I'm an aspie and I was born with short gut syndrome. (meaning I had to have some of my small intestine taken out for it didn't develop properly due to me being born a few weeks early. Later on I had to have more of it taken out when I was about 5-6 years old due to a staph infection that had developed in the same location)
Wow lots of people Have medical problems and it kinda makes me feel better (is a sorta selfish way XD;;; )
@xeithe: Ouch I'm gonna assume shitting blood hurts a lot. Something similar happened to my sister over the summer, I believe she had e coli
@kurapikasuki: It seems like a lot of people have auto immune disorders, what's some of the thing on your list it caused? Just the fact that there's a list sounds not good.
@DarkestPaladin: That does sound debilitating to your work D=
@ucee43bbb999847b: So do the pills help much? I've found that all the stuff I'm taking for arthritis seems to help a bit but not everyone is so lucky.
@demthorshie: Wow, that's no fun at all, but it's lucky for you that it can be managed through diet, like super lucky. Are there like any recipes that you particularly like that fit your dietary changes?
@toadsteroven: That is a lot of bowel to be removed, does it affect your life a lot? Oh so you have Asperger's syndrome, that can be rough. I'm fairly certain my uncle has that and people give him a hard time about it.
@fighterxaos: Yes! I have arthritis and it's super annoying (I'm 24 as of now) my right wrist has very restricted movement and my left if fine and I just compare sometimes and it makes me want to cry. What is it like for you? What methods or treating are you getting?
Well, I went to the doctor last month because I was feeling considerable knee pain. When I saw him he told me it was osteoarthritis in my knees and, he didn't really do anything except offer some pain medicine. He just told me to do everything I can to lose weight. I am definitely losing weight and my knees are starting to feel better. But they're still a bother so what I did on my own accord are to buy some sneakers that have memory foam inside. It's like walking on air with them.
I don't have arthritis in my wrists but I did have a bout wih carpal tunnel. Besides minor flare ups, that was treated with this regimen of a steroid I had to take. I had to take them at exactly the right times and each day there was more to take and they had to be taken at the right time. In order to take care of my wrist when I draw or play a game I wear a wrist watch real tight. It kinda acts like a makeshift brace.
My auto immune system attacks moisture glands in my body, damaging or completely destroying them.
I can't produce saliva, this causes
- My teeth to rot very fast, because they cannot clean between brushing (and I do brush my teeth, I have to go to the dentist to fix cavities every 3 months, (usually takes around 4 - 6 visits, one visit a side of my mouth and area (you know top teeth and bottom teeth) because usually every tooth will have cavities.)
- I'm not able to eat a lot of foods, anything with sugar is a no, not only is it painful as hell when it touches my teeth it will destroy them even faster, carbonated beverages is also a very huge no. Anything dry or sticky I can't eat unless I have a lot of water, because I just can't swallow it, spicy stuff can also suck because it irritates the cuts in my mouth and tongue (cause by all my cavities)
- Dry lips that are always cracking and bleeding or peeling, chap stick helps but it also makes them peel a lot faster and more often, also I can't use it when I'm sleeping so waking up with what fell like cold sores everyday sucks.
I can't produce tears, this causes
- Dry eyes. I have to use eye drops everyday, which can hurt depending on the brand because the membranes are also cracked from my eyes being too dry.
- I can't cry. And though looking like a dick at funerals is not really a medical issue, strong perfumes, onions and fumes from cleaners sting them really fucking bad, to the point where it feels like my eyes are burning. Woman who have more perfume than body weight and men who use body spray like clothes need to just fucking die.
- Really bad light sensitivity.
I can't produce sweat, this causes.
- Obviously dry as hell skin, which is also ichy, my arms and legs are full of scabbing because I'll scratch at them so much I'll just scratch my skin off, I'll just do it absent mindedly without thinking both when I'm awake and when I'm sleeping (though sometimes I can't sleep if it gets too bad) Moisturizer can help sometimes, but more often than not it doesn't,and fuck does that shit sting, and I can't really put it on open wounds either so if I scratched too much skin off I can't use it.
- Body likes to overheat very quickly if I do things that would usually result in sweating, usually resulting in me passing out. This is the worst in the summer. My house does not have air conditioning.
- Random patches of rashes and blisters, this the most irritating when it hits the fingers on my drawing hand.
I no longer have proper lubrication between my joints, this causes,
- Arthritis and sever joint pain. Aside from the pain that comes from drawing with that, I can't walk for very long, so if I want to go out of the house I need to use a wheelchair. If I go out without a wheelchair I will feel good about myself and like I'm normal, but after a while I'll not be able to walk anymore and I'll need help out of wherever it is I am, (and angry as hell drivers waiting for me to cross the fucking street) The joint pain is so bad that stairs are my enemy, they are the most painful thing to try and get up, and sometimes I can't even get up them so I'm suck on one floor of the house until I can.
- Joints just randomly locking so I can't move them from whatever their current position is. This is another reason I get to use the wheelchair, my knee locking in public is not very fun, and usually hurts me by making me hit the ground.
- Random joints swelling and causing pain for just... no reason. It drives me crazy, because there's nothing I can do to prevent this. I'm sorry pinky toe I literally did nothing to you so is there a reason you are swollen and causing me pain, is there something I could have done to prevent this? No? How about you left wrist wtf did I do to offend you today? The right hand is the one doing all the work so wtf is your excuse today? Nothing? No explanation yeah? I would slam you into the wall if it didn't just make me hurt more...
- Can't chew really chewy food or bite through food that is too hard (not that my teeth would allow that anyway)
- Very often the pain will be so bad that I can't move, this is usually the cause of me being bedridden for a few days.
Depression, self loathing, suicidal thoughts and all that junk that is actually pretty common for people with chronic illness. I mean come on, living in constant pain, being handicapped, and having your body constantly attacking itself does not make you feel good about your self. You hate yourself, you want it to stop, but it won't stop because there's no cure. People don't like hanging out with you because they don't want to be seen/deal with someone in a wheelchair (not every place is wheelchair accessible, the amount of plans that had to be canceled because a place wasn't accessible (even though it said it was on the phone ap) are too high to count. YOU end up not liking to hang out with people cause you're tired of being looked down on, your tired of people doing stuff for you or asking if you need help. You constantly contemplate is idea of suicide actually being a mercy killing on your behalf, because you're tired of being in pain, your tired of being a burden to friends and family, and above all else you hate yourself and this body you have been stuck with. You want it to be over, sure your friends will be sad to have you gone but why the hell do you need to suffer in pain like this just to make them happy to have you around like they would one of their pets?
Because the list is getting long I'll stop there and move on to the side effects I've gotten from the medicine I've been given to help treat that shit as well as keep the lupus from attacking my organs.
- Almost complete loss of appetite, I always forget to eat because I'm just... never hungry. This even worse if I'm busy doing stuff. I think I would actually die if not for family or friends reminding me to eat or making me food to make sure I eat. You know how much a weigh now? (which lead to stupid people saying 'oh you look at how healthy you look' ha... no... I'm unintentionally starving myself, there is nothing healthy about that or ANYTHING else about me. You fucking moron.
- Seizures
- Insomnia
- Extreme drowsiness (this was given to me to help combat the insomnia, but it worked too well and made me sleep for whole days.
- I can't remember what it was calls but one medication I was on was causing my heart to beat in an obscure manner or it was skipping beats or something, I was stuck in the hospital for 3 days for emergency testing, then had continued testing a few months after as they tried to figure out what that was and then concluded it was the medication. They were on the verge of giving me a pacemaker (the testing was to make sure that was what I needed. Which I didn't)
- Hallucinations... yaaay.... voices, smelling and seeing things that are not there =_=... just what I always wanted...
- Extreme migraines, that blur my vision (or make it really wavy), increases my light sensitivity to extreme all light cause me pain amounts, and well as extreme noise sensitivity. I usually end up locking myself in one of the bathrooms in the house with the lights turned off, the crack under the door blocked with towels, with me trying to fall asleep on either the floor or in the bathtub because I want excape the light and noise making it worse and futility hope to somehow try and sleep through this pain.
And yeah... post to long. I'll end it at that. Also, if I lived in the USA or a country that didn't have free healthcare like mine I would probably be dead. My household is low income. I and my family would not be able to afford it.
yeah, my brother has Crohn's Disease and is almost at the point where he's controlling it through diet alone too. I think one key to maintaining optimal health and 0 flares is lots and lots and lots of salads. And vegetable/fruit drinks pretty much every day. Not only have I not had a lot of Fibromayalgia symptoms or an IC flare in a long time, I haven't had even so much as a common cold/flu since going on the diet either.
After reading the main part of your messages, my problem seems far less restricting,
at least regarding everyday life. Though…. Well, you’ll form your own opinion
when you’ve read this message :3
I’ve a genetical disease called tuberous sclerosis. It has been diagnosed when I was 8, and since then I’ve got to go to the hospital at least once a year (now less often because the period where I’m in danger of death is over, but I’ll explain this a little later). About the most important manifestations, there are tumors on my kidneys, and in my brain too.
There are also manifestations on the skin, like spots where I don’t tan (but I find this rather useful, as I don’t tan easily, I know when I do xD), and more importantly, “angiofibromas” (exact term), on my face, and these earned me to be ostracized during junior high school, and I lived it very badly (being called "contagious" isn't exactly what makes people happy...). I wasn’t happy to go to school at this time… Fortunately, it has greatly improved now, as people are more mature at age 18 or 19 X3.
Speaking of moral consequences of the disease, I’ve also lived a period when I was mad at my brothers and sisters (and sadly I still feel resent sometimes...), because this came from a spontaneous mutation, anyone amongst my siblings could have had it. And here I was, suffering things that they didn’t have to, just because things messed up when I wasn’t even born !
Moreover, there is a risk of 1 out of 2 that I give this disease to my child, if I ever have one. And let me tell you that I am LUCKY. I’ve seen people suffering from more evolved forms of the disease, and dealing with epilepsy isn’t easy (for having a friend who has epilepsy, I know how bad it can be… I will never forget the day when we were speaking casually, and suddenly she had a crisis, and she nearly fall on the head…). Also, tumors on my kidneys and in my brain aren’t evolving, so there’s no need for a surgery (regarding brain surgery, it didn't have a high % of success to remove the entire tumor, if I remember right, due to the place where it is located…), as it’s generally evolving more during adolescence.
But before that we knew it, I was very worried. I could have had a stroke… >__<
However, regarding things which are still certain, I put myself in danger if I want to have a child. I don’t remember the details though… there are consequences on the very functionning of my body.
And being bullied and having to live knowing that because a single gene which hasn’t been activated, you have to undergo medical exams, and when you’re at the hospital, you feel so bad because everyday you don’t have any problems, no mental retard, no physical problem, I remember my mom telling me that, back when I was 13 or so, I told the neurologist "I don't know why I'm here"...
Back to everyday life, you’d wanna say : “Look at me, I’m suffering, I’ve seen how people can be rough to somebody who is different, and just because I would want to have a child, I’d put my life in danger !”. And I feel very guilty for thinking this, because it makes me feel like I shouldn't display my "little" problems… This sh*t has made me think so low about myself =v=
Sorry for the novel, I've been thinking about posting long ago, but I was a little afraid to do so, but this evening, I feel down so I needed to write this down ._.
(yeah, I feel down often, and during these moments I cannot do so much to improve my mood... some friends can do so, but when I can't talk to them, it's very difficult to stand this feeling... usually I listen to music)
Joints Hypermobility. My story of recovery.
Hi!
I am familiar with these symptoms.
This is the connective tissue disease.
It is called “Joints Hypermobility”.
The joints sore, they become crunchy, soft tissue may ache…
The ligaments are stretched.
Cartilage tissue wears out fast.
I published treatment regimens.
There is information regarding alternative medicine preparations as well.
I’ll tell what can help you!
This is my story of recovery -
The joints can be cured! Disc herniation being treated.
Hi
I am familiar with such symptoms.
I got arthrosis of the both knee joints.
The hyaline cartilage is worn out. It’s only 0.1 – 0.3 cm. thick.
The joints are crunchy, they hurt.
There are arthrosis treatment regimens.
The hyaline cartilage can be regenerated!
I can tell what will help you!
I've found my people!
Let's see - I have ulnar nerve entrapment, tennis elbow issues, wrist pain, all that fun stuff us artists usually get to deal with... I was just diagnosed a few short months ago as celiac, with (temporary?) lactose intolerance and spontaneously I have developed some sort of nut allergy... The medications I'm on to help soothe my digestion til it all can heal make it so I have to lie down several times a day, so I can't actually hold a job, so that's fun! I also have extremely low blood pressure and have fainting issues very often. Let's just say it's not fun being me!