TLDR: cool, totally did this, appreciate the feedback and the research but also know I am writing a story!
Very good thread, I always appreciate when writers take the time to research characters who have certain character traits or conditions.
I am not sure if disabled is the word to describe my protag--- he has face blindness, but we have been doing research about the condition to properly portray it in a way that is truthful yet also understandable to those who don't have it. We've read articles, tests, documentaries, videos... and we've learned quite a bit (I hope to meet someone with it to dive into the daily routines etc, but we read a lot of that on forums already).
Speaking of forums... I will say that asking for feedback on the forum with what I have so far, was met with overall positive reviews, but also some critique that I feel mixed on-- but also understand where they are coming from (but realize that there may be other factors in play when interacting on the forum).
Mostly, they were saying how THEY would react in situations or explain their own experiences... completely disregarding how my character reacted. Having anxiety issues of my own, I handled it rather well I think. I am not writing their story, experiences etc, I am writing my characters experience, and his reactions. Because the condition has a range on the spectrum, there are other characteristics that this person felt should be portrayed (which my protag does have-- just not has blatant as this person would have liked)... which all I can say is -- sorry???
But I will say that their concerns are something we are addressing further in the story-- SO-- based on their crit-- I know we are on the right track... but I did get tired of "defending" or explaining -- in small sample I provided. Our exchange, I think, went well-- though I felt some hostility on his end-- but writing positive and sincere is the best way to engage I think. I learned some things I didn't know, so it wasn't just responding to a rant.
I feel that writing an accurate portrayal vs story telling mechanics is an entirely different issue that I don't feel obligated to explain repeatedly. I mean... I am not sure the FBI would hire a person who is faceblind! C'mon-- artistic liberties man!
But when interacting and researching, I will add: be polite, exercise patience, understanding, and step back for a second to see where the other person is coming from. They have experienced something you really have no clue what living through it is truly like.
And I think that, at the end of the day, take what you need to enhance your character and be as truthful as possible for whatever condition they have-- but remember what your story is about and don't get too sucked into those details. There is an audience that you need to explain and entertain at the same time... just be mindful.
As I said to the person I was chatting with, the character lives with this condition, but it does not define him. How he reacts to everyday situations is what defines him.