30 / 67
Jul 2015

It's a shame it takes so long to be diagnosed let alone treated! I take steroids twice a day and am on my third treatment for RA. I was on Humira but it wasn't strong enough. Then I was on Remicade but ended up being highly allergic to it. Now I'm on Actemra. I have to sit with an IV once every month for that one but it's working somewhat.

You aren't supposed to be on steroids for too long. I've been on them for about three years now. (Way longer than suggested.) But I need them to be able to work full time and draw/walk. I hope you are on a low dose! The side-effects are horrid.

Since I'm not allowed to have additional pain medications, I use krill/fish oil and get plenty of rest. Also, foods like spaghetti sauce and anything high in salt can cause flare ups and inflammation. You need to keep a good diet and good sleep schedule. ++ I also suggest doing mild workouts. I finally am able to straighten my left arm after a few days of light-weight lifting. ^^

Good luck! I hope you find a routine and lifestyle that keeps the RA from holding you back. It's tough, but so many people are dealing with it! The chronic pain never goes away. (I can't remember a pain free day for the last five years) But it will make you tougher!

@Cielle yeah people do that with me too like oh you shouldn't do that or a do you need help with that. it gets tiring. Gah you're lucky you have someone you can talk to in person about this stuff. Whenever I bring it up to my friends I can feel them roll their eyes like not this again >.<;;;; Or on the other side they are like oh poor baby, not sure which is worse.

@Damon Oh man that's a long time to have joint pain. I hope there's a treatment that works for you (I don't know much about fibromyalgia but I do know about being in pain most of the time) Also you are lucky it hasn't impeded your drawing skills, though that sucks about the sculpting, did you use to sculpt a lot? Hmm it seems like a lot of people have depression or anxiety. Awe you have a train wreck of a body do you want a hug? DX

@VermillionWorks Yeah those count I'd say, I mean It's not the same as arthritis or tendonitis but it still get's in the way of life at times da? Gah tennis elbow! I strained that part of my body once it's no fun.

@purrlpankras7 Ouch, my aunt and mom have psoriasis and from what they say it hurts and itches badly...I mean I know it's not the same thing but both suck >.<;;;

@Amirai Oh man so really all you can do is wait? I am so bad at that.

@GlanceReviver You know that doesn't surprise me I mean I think studying the vagina and uterus are still in their infant stages compared to other organs (I mean it wasn't until masters and johnson that people came to recognize that women would fake orgasms and that a penis was not required for a woman to be stimulated and that was mid sixties so I guess it makes sense >.<;;; ) women's organs get ignored in medicine, did you know a woman's heart is different than a man's the arteries and veins are smaller, so heart problems manifest differently (particularly heart attacks.)

@Marchen Awe here baby have a hug *hugs

@MechanicalPenguin Just saw my doctor today and we're talking about putting me on a biologic and reducing the steroid amount (it wasn't a lot but they are a little heisitant to take me off it =.= ) I'm really freaked out about self injections are they easy to get use to?
Yeah I've been trying to change my diet I've mostly been sticking to a vegetarian diet and it seems okay, but my joints haven't really gotten better actually in the past month or two it's somehow gotten worse. /=
So weight lifting can help? I'll try that.

Yeah, a little bit of of a workout is good. Try to do ones that aren't stressful on your joints. Light walking, yoga, etc. Keep moving but never push yourself too hard. Doing so keeps you warm and your joints from getting stiff. Do you know the name of the biologic yet? I hope it works for you! Some people are able to get off of steroids completely. Also, self injections aren't that bad. I always did it in my thigh and allowed the injection to sit in room-temperature for about thirty minutes. If you do it while it's too cold, it hurts. I suggest just turning television or music on to distract you. Self injections are much better than hour to 3 hour long IVs at the doctors office. Self injections only take a second. ^_^

Also, remember that your immune system may be weakened so be very careful to wash your hands and stay healthy!

I think I might have picked up a bit of Acid Reflux from my Dad's side. My Dad has quite a few digestive problems when it comes to medical health. Occasionally, I get heartburn if I eat to much sugar, or if I don't get exercise for a long period of time.

I also have wind problems whenever I feel anxious or excited. Then there's my astigmatism, which is why I wear prescription lenses.

And then, of course, I have Aspergers Syndrome (not that that's a medical condition, but whatevs).

For many years, I was incredibly skinny because of an overactive thyroid gland (Graves' Disease). I could see my ribs and eating had no effect on my weight whatsoever. In fact, I had an irregular heartbeat SO bad that it prevented me from sleeping for about 8 to 10 hours every night! Went to the doctor, who determined the cause and I got a scan just to be sure.

If I had let it go on, my heart would eventually BURST, much like a car engine that's always revved up. No wonder I got more on edge and nervous as the years went on.

Now I'm getting the body mass I should've had, and my thyroid is elevated, with medication.

Are you currently using any topical steroids? This might seem really weird, but I'm currently going through something called topical steroid withdrawal and it's been living hell for me. I don't really want to go too much into it on here, but If you happen to be using them, I highly suggest you read into it.

Ok that's great, just wanted to let you know about it and if a doctor prescribes them to you, please read into it first. I made a mistake on relying on them for my eczema and it just ended up doing much more harm than good. Right now I'm going through this whole withdrawal because my skin is "addicted" to these steroid creams.

By the way, I usually make my own moistrizers with things like coconut oil, shea butter, and essential oils. I like them much better than store bought creams.

Ohhh my doctor gave me a itch relief cream and said how much I can put it on in a day.
but eh I'm in England, it might be different in different countries?

Hospital is my second home.
I've been sickly since I was born. I had convulsions and nearly died a couple of times. In my childhood, I met an accident to which they discovered I have tuberculosis. Elementary was full of headaches. Literally. Highschool, I got plagued by digestion problems which carried on until college. An unusual infection nearly blew off my insides. Ear problems manifested and it was later discovered that my ear canal was more crooked than normal. Spine problem followed. Recently this year, a lump on my back grew and it required a surgeon to take it out. Just when I thought my ordeal is finally over, my right foot swelled. I had to stay on bed with my foot raised for days. Now, thankfully, I'm well.

@MechanicalPenguin I started working out a bit and it seems to be helping a little so that's nice
Umm I'm going to be put on methotraxate, I was considering a self injection but I have serious trouble with needles and no one who is willing to learn how to for me >////< but it's just a trial period right now so yeah. Gah thanks for the warning I'll be sure to be careful.

@jayorten Ouch heartburn. oh man my sister has astigmatism as well and my dad has keratoconus I mean I don't but I do know that eye problems are sucky and sometimes the special prescription lenses help like nothing.

@atlas Oh man that sounds scary I'm sorry you had to go through that. I'm glad your heart didn't burst

@scottwuming Wow that's a long list of things, so your tb was cured right? because that's once scary illness, actually all of that sounds scary, I'm glad to hear that you are well now because that's a lot to live through you deserve some nice rest.

I'm deaf.
Well, 86% deaf.
As a result, I shy away from people and general chit-chat. It's not something I'd wish on my worse enemy and it's made my life quite unpleasant at times.
So, I sit at my drawing table and leave it all behind.
Unless, of course, I'm making a slyly concealed observational dig/gag about how us deaf people can be treated.

I have fibromyalgia.
I have had chronic pain since about 8 years old. I traveled to plenty of doctors. I was informed that I may have rheumatoid arthritis. By the time I was 12 I was diagnosed with fibro. I am soon to be 24 now, I can totally get you @EiraQueenofSnow.
I struggle a lot when it comes to sitting and drawing for hours. I have a hard time keeping focus, chronic fatigue, and mood swings. yay.
I tend to take a lot of breaks through out the day to stretch my legs. I try to do yoga daily and eat a low carb diet. I have learned that when ever I eat carbs, the fibromyalgia flares up.
]:

4 months later

@jayorten

Experiencing digestive problems is normal to every person who eat too much. But when symptoms get worst then I will say we should have to take herbal supplements to solve digestion problems. The herbal supplements I always take when I got this symptoms is the one came from Mimonis Digestic. It does very well for digestive problems.

lel
I have a vitamin D deficiency because my bones r too stupid to absorb the goods
I have juvi rheumatoid arthritis in my everywhere
Psoriasis that has slowly spread from the top of my scalp to my inner earses
and costochondritis
I've dislocated my shoulder twice from picking up bags
My bones are prone to mysterious pain, especially my forearms and shins, which doctors can't figure out.
Today me and my mom shared winter joint pain stories and we're almost 30 years apart
It snowed yesterday and I may have to consider lifealert
Look at me, I'm falling apart :V
Look at you guys, you guys are falling part V:

Well, I have Aspergers aka upper level Autism.
Doesn't actually affect my drawing skills, but it can make me seriously depressed and get panic attacks, sometimes that being the cause of why I don't update as often as I should.
Fortunately, my best friend who also has Aspergers has been helping me cope with it as much as she can.

My mom's family has had a history of suffering the same problem @winglesscomic has, so I'm a bit worried I might eventually have that too.

Same here with the eczema problem. It isn't that bad as long as I remember to moisturize and put some steroid cream on the severe ones.

Well, I have Crohn's disease. Literally last Sunday I shitted blood and passed out next to the toilet, my sister found me a moment later than my parents took me to the hospital and had a Colonscopy. (This is also why I haven't been on Tapastic for the past week.)
Edit: I'v had Crohn's Disease for a few years now, I wasn't just diagnosed.

So from what I gather, yeah you're not alone there with these issues!

Asthma for me!

Also femoral acetabular impingement in my hips but that means I can sit and draw more so yay! (that's what probably caused the problem in the first place but eh...)

A very long list debilitating medical problems caused by auto immune disorders (Lupus and Sjogren's Syndrome)